via GIPHY For the last two years,  I've been working hard on getting an agent. (If you're not sure what that means, go read  t...

At the beginning of the month,  the FDA approved Orkambi, Vertex's second drug that treats the underlying cause of cystic fibrosis. Unli...

I frequently get e-mails from women  with cystic fibrosis who have gotten pregnant (expectedly or unexpectedly) after starting Kalydeco a...

Me, age 8 I have always been what you would call " imaginative. "  Throughout my growing-up years, adults frequently referred ...