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Thursday, January 1, 2015
Orkambi in Pregnancy
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At the beginning of the month, the FDA approved Orkambi, Vertex's second drug that treats the underlying cause of cystic fibrosis. Unli...
Why I Chose To Stay On Kalydeco While Pregnant
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I frequently get e-mails from women with cystic fibrosis who have gotten pregnant (expectedly or unexpectedly) after starting Kalydeco a...
Tuesday, May 22, 2012
Welcome To My ImagiNation
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Me, age 8 I have always been what you would call " imaginative. " Throughout my growing-up years, adults frequently referred ...
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