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Sunday, May 29, 2016
How I Got My Agent
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via GIPHY For the last two years, I've been working hard on getting an agent. (If you're not sure what that means, go read t...
Thursday, January 1, 2015
Orkambi in Pregnancy
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At the beginning of the month, the FDA approved Orkambi, Vertex's second drug that treats the underlying cause of cystic fibrosis. Unli...
Why I Chose To Stay On Kalydeco While Pregnant
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I frequently get e-mails from women with cystic fibrosis who have gotten pregnant (expectedly or unexpectedly) after starting Kalydeco a...
Tuesday, May 22, 2012
Welcome To My ImagiNation
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Me, age 8 I have always been what you would call " imaginative. " Throughout my growing-up years, adults frequently referred ...
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